She couldn’t care for herself. There was no family. There were loving friends but they didn’t have the skill. The need was apparent. Fear was pervasive.
Not far away was a hospice. After a call, two competent, quiet, non-judgmental individuals arrived to clean and redress the wounds of the ill patient. A bit of joy emerged. They assured the patient that they would return to help as needed, in a manner respectful of her beliefs and expectations.
There is no price to place on these instances of timely care — of loving, practical support present at the moment of greatest need. There was no lecturing, no analyzing of worthiness — no technology to separate heart meeting heart. Their efforts were remarkably kind.
A perfect model of palliative-care can be seen in the biblical parable of the Good Samaritan, who, finding a wounded man left unattended by others, approached this stranger, bandaged him, placed him on his burro, took him to an inn, and provided funds for his care by the innkeeper.
Fittingly, November is national hospice/palliative care month and there is reason to be immensely grateful for the commitment of those who do this work.
Several years ago in Arizona, there was a conference for end-of-life professionals. They had asked eight faiths to share their views on this subject. The purpose was to broaden the understanding of these care-givers so they could better meet the needs of patients, in a manner respectful of the individual patient’s beliefs…a most admirable pursuit.
While all can and should appreciate the care that hospice and palliative-care professionals provide the uncomforted, the assumed certainty of near-term death may be unnecessary. This assumption seems to be shifting currently.
Palliative (from the Latin palliare, meaning “to cloak”) has been defined as “care for the terminally ill and their families.” Yet, there is a distinction between hospice care and palliative care. Hospice care is offered at home or in facilities tending to the terminally ill. Palliative-care is multi-disciplinary, including spiritual care, which is not restricted to end-of-life prognoses. Palliative care continues expanding into traditional medical environments. As a recent report notes, “The focus on a patient’s quality of life has increased greatly during the past 20 years. In the United States today, 55 percent of hospitals with more than 100 beds offer a palliative-care program, and nearly one-fifth of community hospitals have palliative-care programs.”
In a recent article by the Mayo Clinic staff, this distinction was re-emphasized, stating that palliative-care is not tied to termination of life but to the need for comfort during times that would otherwise be more painful.
It doesn’t appear that the Good Samaritan expected the stranger, whom he had helped, to die at the inn. He had offered to return and pay for additional provisions for the injured traveler. He was expecting the man to continue his life.
As the hospice concept and the palliative-care concept further develop and overlap in purpose, all care can become less disease and end-of-life focused. The compassion witnessed in both approaches will take the lead in how to treat the uncomforted, with the added expectation of wholeness and health. No longer will hospice and palliative-care be simply a cloak to cover the acceptance of decline and termination. The great good that the hospice and palliative care workers do today may find yet greater good in the projection of life, not death, with the role of compassion progressing beyond the cloaking of pain.
Many have found comfort in this excerpt from an interpretation of the 23rd Psalm by the health seeker, religious leader, and author of “Science and Health,” Mary Baker Eddy, where the term “Love” is used for the Divine: “Yea, though I walk through the valley of the shadow of death, I will fear no evil: for [Love] is with me; [Love’s] rod and [Love’s] staff they comfort me.” As a human expression of the divine Love, the compassion given by hospice and palliative-care workers can help patients walk on through the valley of death, not merely come to final rest there.
— Rich Evans of Scottsdale is the spokesman for the Christian Science Committee on Publication for Arizona.