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Proposal would help families of children with disabilities by paying parents to be caregivers

Deanna Pistono Cronkite News//November 13, 2023//[read_meter]

parent caregivers, families, Arizona Health Care Cost Containment System

Brandi Coon talks with her son Tyson, who is non-speaking and uses an alternative communication device to communicate with others. Tyson has a severe type of epilepsy known as Lennox-Gastaut syndrome, cerebral palsy, right-sided blindness and oral dysphagia, a condition that affects his mouth, tongue and lips. In 2020, as a result of the Covid pandemic, the Arizona Health Care Cost Containment System (AHCCCS) requested and was granted emergency flexibility to use funds to pay parents for providing specialized care to their children under 18. Though the flexibility was previously extended, it is currently set to expire in March 2024. A proposal submitted by AHCCCS to the Center for Medicare and Medicaid Services (CMS) this September, however, would permanently extend the program, allowing parent caregivers who meet direct care worker requirements to be paid for up to 40 hours a week. (Photo by Kevinjonah Paguio/Cronkite News)

Proposal would help families of children with disabilities by paying parents to be caregivers

Deanna Pistono Cronkite News//November 13, 2023//[read_meter]

Correction: Corrects the byline to reflect that Deanna Pistono wrote this article. Tyson Coon turns 9 this month. He enjoys reading and watching Disney movies, such as “Frozen” or “Moana.”...

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